Comments for Just Breathe http://rcbsam.wordpress.com A Gathering Place for Families (and Friends of Families) With Kids Who Have Cystic Fibrosis Wed, 30 Apr 2008 19:27:50 +0000 http://wordpress.com/ hourly 1 Comment on To Tube or Not to Tube by Alissa Harris http://rcbsam.wordpress.com/2008/04/29/to-tube-or-not-to-tube/#comment-10 Alissa Harris Wed, 30 Apr 2008 19:27:50 +0000 http://rcbsam.wordpress.com/?p=11#comment-10 This post gave a very insightful - if heartbreaking - look into Neil's condition, especially for those of us who don't know very much about Cystic Fibrosis. Though this is a personal story, it was also very informative and let us all in on the struggles of raising a child with Cystic Fibrosis. I can only hope that the surgery and everything related to it go well and that you'll make sure to keep us all updated on Neil's progress, even after class has ended. As Phylicia said above, my prayers are with you all. This post gave a very insightful – if heartbreaking – look into Neil’s condition, especially for those of us who don’t know very much about Cystic Fibrosis. Though this is a personal story, it was also very informative and let us all in on the struggles of raising a child with Cystic Fibrosis.

I can only hope that the surgery and everything related to it go well and that you’ll make sure to keep us all updated on Neil’s progress, even after class has ended. As Phylicia said above, my prayers are with you all.

]]> Comment on To Tube or Not to Tube by phylicia04 http://rcbsam.wordpress.com/2008/04/29/to-tube-or-not-to-tube/#comment-5 phylicia04 Tue, 29 Apr 2008 22:11:32 +0000 http://rcbsam.wordpress.com/?p=11#comment-5 I cannot even begin to imagine the struggles you have with this, and I must say you and Sheila are amazing individuals for adopting a child with a know problem and still giving him a life he can enjoy and a family that loves him enough to tend to his needs! Kudos to you!! As for the surgery, I can really understand what you are saying, it is hard... and I think its ok that you are exhausted (any of us would be), Im assuming this will benefit Neil? Also, I was wondering if this will help him gain the weight he needs then, since he will not be vomiting everything up? Either way, I hope and pray that everything works out for the best! I cannot even begin to imagine the struggles you have with this, and I must say you and Sheila are amazing individuals for adopting a child with a know problem and still giving him a life he can enjoy and a family that loves him enough to tend to his needs! Kudos to you!!

As for the surgery, I can really understand what you are saying, it is hard… and I think its ok that you are exhausted (any of us would be), Im assuming this will benefit Neil? Also, I was wondering if this will help him gain the weight he needs then, since he will not be vomiting everything up?

Either way, I hope and pray that everything works out for the best!

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